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Lupus or not Lupus?

Autoimmune Diseases | Last Active: Feb 25 10:00pm | Replies (45)

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@gingerw

@thecyborgenchi We have all learned to advocate for ourselves. It is proactive, helpful, fulfilling, frustrating, and rewarding - all at the same time!

While you plough through getting the correct diagnosis, a couple of things I would like to point out to you. Number one, we are all here to listen to you, and support you. Venting and getting feedback helps us get through the day. Number two, autoimmune conditions like lupus, can be real difficult to diagnose. I have heard it referred to as a "constellation disease", as there can be many facets to it. When I was diagnosed in 1988, there weren't the sophisticated tests available now, and they had to limp along.

Wishing you success in getting in to a rheumatologist soon, who can look at the whole picture and come up with a diagnosis/game plan!
Ginger

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Replies to "@thecyborgenchi We have all learned to advocate for ourselves. It is proactive, helpful, fulfilling, frustrating, and..."

Sometimes I wish I had someone that could do all the advocating for me, because I am SO tired every single day and having to fight for things just adds to that. But, being able to get on here and see words of encouragement really does help, so thank you for that!

I do plan to call the rheumatologist office tomorrow and ask if they received my referral (though my insurance doesn't actually require one) and get an appointment set up. I'm hoping my PCP can send my medical history and recent blood work ahead of time. And unless they physically need me there for the first appointment, a tele-visit would be nice, but... I'll do what I need to, either way.

Hope you have a great holiday! I'll get back and update as soon as I can