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@cindelee617

Unfortunately my doctor does not believe in long covid. I was in the hospital five times dealing with long covid. I was dizzy and falling forward, I had major heart palpitations and chest pain. My right arm would get tingly. Several times I thought I was having a heart attack. I learned from another doctor at my pcp's office, the primary care doctor will get a mark on their doctors score if a patient goes to the emergency room several times. I had never heard of such a thing, but I thought why are you telling me this? I realized there must have been discussion about me going to the ER in the doctor's office. Not how I was doing, but my visits to the ER. Are you kidding me? The ER told me if I still have these issues to come right back, evidently my doctor didn't feel the same way. My point to this is, my doctor does not believe in long covid. I asked him if he believed in LC, his answer was, well something's going on why don't I send you to a psychologist they may be able to help these issues. I wanted to scream! I had been dealing with so many crazy health issues that I never gad before covid. I'm a 64 year old woman, an avid tennis player and was very healthy. The health issues started six months after my covid. For my own doctor not to not believe in me I was very hard and stressful for me. If anybody else has dealt with these issues with their doctor, I feel bad for you, I know how it feels when you own doctor does not believe in you. I had never had any ongoing health issues and barely went to the doctors before covid as I mentioned before, I do not have mental issues, theres nothing bearing on me, or stressing me out. Just the health issues with long covid. I wanted to go to Mayo Clinic, in order for me to be able to make an appointment I had to go through my primary doctor, I knew that would never happen. I hope everything works out well for you I'm sure it will. Hang in there, I am feeling much better regarding my long covid. It was close to two years that I dealth with the LC health issues. I am now feeling much better, rarely do I get palpitations, chest pain. I'm back on the tennis courts, I take walks by myself because I no longer get dizzy. It's been a long haul per se. I am getting much better. The only answer I have for this change is, time and perhaps the probiotics that I'm taking. That's the only change that I have done on my own besides never giving up and thinking as positive. I refused to own it!

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Replies to "Unfortunately my doctor does not believe in long covid. I was in the hospital five times..."

@cindelee617 My view we are at the limits of medical science on a disease that hasn't been studied. I have a GP who ran every test under the sun finding nothing wrong. At no time have any of my medical professionals suggested I was imagining things although I have read and been told by others that does happen which is sad. My GP sent me on to my Cardiologist who said "let's take the journey of what it is not" because he knew the medical community was dealing with something it didn't have much science on. I went through Cardiology, ENT, Neurology and the only abnormality found was "some level of dysautonomia" which is a symptom of Long COVID (and POTS, etc). This journey took over a year (there are long lines for specialists and special tests). Off to Mayo I went. I am on a Mayo plan and feel better, not 100% but better. I am pushing on with hopes that this is one day a memory. My local Cardiologist discovered my dysautonomia via tilt table test and when the tilt table was redone at Mayo it showed no dyautonomia which indicated I was healing.

I wish you well on your journey and suggest you find a new Doctor that doesn't think he knows it all and realizes that thousands and thousands of people aren't making this up.

I can not believe your doctor!!!! I’m so mad. To me, he should be reported. Obviously Long Coved is very real. The fact that he is giving you a bad time going to the ER is unbelievable!
I hope you look into another doctor to care for you. You do not deserve incompetence like this doctor.
I’m sorry you’re suffering. Know you’re not alone. I’m just a few weeks shy of 2 years with LC.
I’ll pray for you!!