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Just diagnosed with atypical complex hyperplasia after uterine biopsy
Gynecologic Cancers | Last Active: Jan 10 12:06pm | Replies (27)Comment receiving replies
Helen, I had my follow up today after my surgery and I’m in complete shock. Stage 1 endometrial cancer however they found a 3mm tumor in my ovary as well. I’m beyond devastated. I almost passed out in the Dr’s office. They did biopsy the lymph nodes they came back negative they also did a cavity wash which came back negative. Oncologist believes that these are two serrated incidences. I’m so distraught not sure what to think. Oncologist is working with pathology to see if both are related, if they are then I have to have chemo, if not then no chemo necessary. Have you ever heard of this before? I’m so so scared. Thank you
Replies to "Helen, I had my follow up today after my surgery and I’m in complete shock. Stage..."
@amt1105 I haven't heard specifically of what you are sharing about the tumor in the ovary and endometrial cancer. At least not in our Support Group. We're a self-selected group who comes here and I hope others in group will come here and provide more information about their experiences.
I've been in your place and heard medical results (endometrial cancer) that I wasn't prepared for or expected. It's so frightening and devastating. I'm going to share the advice I give myself. What you're going through is huge and trying to minimize it or trying to block it from your mind isn't helpful. It might sound trite, but allow yourself your feelings. If there are others (your spouse, your children, your close friends) who will sit with you and listen, then allow yourself to share your feelings, especially your fears. If you are having difficulty sleeping (I did) then get up, walk around, and if possible, go outside and look at the night sky. If it's too cold where you are you can look out your windows. I find nature calming and perhaps you do too. The emotional place you are right now is even more scary because you don't have all the information yet. So, you wait for the pathologists to do their work. Waiting is really difficult.
It's very encouraging that lymph nodes were negative as was the pelvic wash. The tumor in the ovary may be benign and unrelated to the endometrial cancer. Hope. That's what I keep coming back to. This doesn't mean "I'll think positive. I'll be optimistic". There is something deeply spiritual, to me, about Hope. You are doing everything right by getting medical care, working with your doctors, and following up. You are turning toward Hope by allowing the professionals to do what they do best.
When is your next appointment with your oncologist?
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HI am1105,
I'm so sorry to hear your news. It must be really frightening. I wish I knew more about it...I send this with prayers and lots of sympathy. I wanted you to see something here in case Helen couldn't reply.
I don't mean to share "toxic positivity" here, so ignore this part if you aren't ready to hear it. One good thing is that you are getting medical care right now. You have a team in place. You are getting informed. They are following the procedures and doing the tests. Maybe try repeating a phrase to calm your nerves and fears? Something like "They know what they are doing. They do it all the time." or "I am getting the best care possible."?
I hope this helps a little. Sending hugs.