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Lupus or not Lupus?

Autoimmune Diseases | Last Active: Feb 25 10:00pm | Replies (45)

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@thisoldewe

WOW! You have much to be stressed about. These social burdens, isolation and your dear son combine to drain our stamina! I can't be there for you, but we can read your notes, listen and send encouragement.
Do you have in your town any groups that meet: such as an arthritis group... you don't have a diagnosis yet, but you would find lots of folks who have gone through similar journeys. I do hope you can find a pair of compassionate ears! We all need them.
Perhaps there is a group at a mental health place that would have some meetings or 'something' for 'Stress', or for parents with kids with special needs? .. I'm just thinking of how / where you could find some support.
Personally, I have found groups have been a great place for support and learning. There was an Arthritis Clinic in my previous town, that offered several groups and therapy, etc.
In the meantime, you have 'Connect'!
Let us know how you get on with your appointment
All the best to you.

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Replies to "WOW! You have much to be stressed about. These social burdens, isolation and your dear son..."

I refer to the area I live as a "black hole" for services/support/quality anything. It's a "small" town (12k+-), and I'll leave it at that. I've had to fight my son's whole life to make sure he gets what he needs, and now I'm fighting for myself. It's exhausting - and I'm ALREADY exhausted all the time anyway lol. I have been outsourcing support from here and Facebook support groups, that's the best I can do. It's enough to know that I'm not alone.

As for appointment... I got a call Monday from PCP office. They sent referral to someone that doesn't take my insurance, so I got that straightened out. Would've been great having to drive 45 minutes instead of 2 hours, buuuuut... black hole 😛

I'll be overextending myself and taking my son to visit family for the holiday and his birthday, so I probly won't get that appointment or be back on here until next year. So, I'll update when and as I can. I hope you have a great holiday!