← Return to Lupus or not Lupus?

Discussion

Lupus or not Lupus?

Autoimmune Diseases | Last Active: Feb 25 10:00pm | Replies (45)

Comment receiving replies
@thisoldewe

Nope... you're not crazy, just stressed!
You are experiencing the same thing that many of us have
also lived... many years before the diagnosis. You are NOT alone.
Becky has given you great advise: yes, I too tend to 'expond' when stressed, because I wanted to explain everything so they would understand! But.. the opposite is required.
If you are old (like me) you may remember an old TV show, where the exhausted, grumpy cop keeps saying.. "just the facts ma'am, just the facts"
This is sooooo true for your appointments. Remember that the job of finding the diagnosis is theirs... your job is to clearly, and calmly state your symptoms. Can you take a trusted person with you to your appointment; whose presence will keep you grounded, and help you feel calm?
I do wish for you to find a doctor whom you can work with. This road is a long one... but heavily travelled. Plz let us know how you get on.
All the best!
There are many tests for the myriad of autoimmune diseases.

Jump to this post


Replies to "Nope... you're not crazy, just stressed! You are experiencing the same thing that many of us..."

Thank you so much for your kind words, seriously! I do feel crazy, but I KNOW i'm just majorly stressed out. I keep repeatedly being told that my diagnostics are fine and I'm healthy... it REALLY wears me down, and I can't afford to be more worn down than I already am.

As for "old" - my legs have been deemed to have the nerve flow of a 90 year old, does that count?! I FEEL old, but... I'm only 41 😛 But I think I may know what show you're talking about, that's from my parents' era hehe

As for a trusted person to take with me... that is much more difficult. I don't have many of those now. A best friend (she would not be the one to keep me calm tho) and a cousin (that works constantly) - both of whom live 30-hour away from me, respectively. Due to recent and major life changes, my mom left her husband (yes, he is technically my father, but ugh) and moved to Colorado to be with her sister, so... yeah, I'm on my own. My son is almost 18, but he is autistic (needs care) and I wouldn't subject him to any of this. He IS the sole reason I haven't given up.

Hopefully the doctor's office will do as I have firmly requested and get me that referral to the rheumatologist, and we can go from there. 🙂