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Anyone had surgery to remove typical carcinoids of the lung?
Neuroendocrine Tumors (NETs) | Last Active: Dec 7, 2023 | Replies (27)Comment receiving replies
@jhhaas
Glad the surgery is behind you. Yes, you should have a NETs multidisciplinary team at least as part of your care team. One at a centers of excellence will work with your local team. Look into octreotide injections to slow the growth of additional tumors and reduce any symptoms caused by DIPNECH. Prayers for you.
Replies to "@jhhaas Glad the surgery is behind you. Yes, you should have a NETs multidisciplinary team at..."
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Thank you, Colleen. I will definitely look into establishing a team moving forward. So far my symptoms are not very problematic, thankfully but I want to stay on top of this, for sure.