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Anyone had surgery to remove typical carcinoids of the lung?

Neuroendocrine Tumors (NETs) | Last Active: Dec 7, 2023 | Replies (27)
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@californiazebra

@jhhaas
Glad the surgery is behind you. Yes, you should have a NETs multidisciplinary team at least as part of your care team. One at a centers of excellence will work with your local team. Look into octreotide injections to slow the growth of additional tumors and reduce any symptoms caused by DIPNECH. Prayers for you.

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Replies to "@jhhaas Glad the surgery is behind you. Yes, you should have a NETs multidisciplinary team at..."
jhhaas | @jhhaas | Dec 7, 2023

Thank you, Colleen. I will definitely look into establishing a team moving forward. So far my symptoms are not very problematic, thankfully but I want to stay on top of this, for sure.

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