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First Bite Syndrome after unilateral Carotid Paraganglioma surgery.

Neuroendocrine Tumors (NETs) | Last Active: Dec 8, 2023 | Replies (14)
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@coachv

10 years ago and the area is still numb? Wow. Not something to look forward to. In my case they also had to remove seven lymph nodes. I ended up with a 6 inches scar. Pretty big opening. Do you remember if sour and spicy foods triggered it too?

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Replies to "10 years ago and the area is still numb? Wow. Not something to look forward to...."
mermaid7272 | @mermaid7272 | Dec 8, 2023

A nerve in that area was cut, and the "surgeon" told me that it would be permanent. I also have a large scar on my neck, but not as big as yours! I don't enjoy spicy foods, but sour and especially berries still trigger the first bite. Strawberries, blackberries and other types are annoying.
There are much worse medical problems, believe me! Good luck, it will be better in time.

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