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DiscussionSister not diagnosed yet but cognitive and physical challenges
Caregivers: Dementia | Last Active: Jan 14 11:02am | Replies (28)Comment receiving replies
Replies to "Linda I remember vividly the day we first heard Lewy Body Dementia when my DW got..."
Your words are kind and hopeful. You have woven love so beautifully around your DW. I would write more as a reply but I'm just trying to hang on this morning. We tried to keep my sister awake half the night like the EEG appointment (scheduled for today 12/8)instructions said but it was hard. My son and husband stayed up with us, watching over me watching over her. Everybody is sleepy now! That's not great for navigating a hard day at clinic. She also has a PET scan. I'm concerned as to how she will get through these tests. She said yesterday that she feels like she's being manipulated about these medical details and the tests. And that was an angry time for her. I told her the doctor wants more information to help her best. She calmed down finally.
Her son was able to call and that helped her gain trust about the tests. It's just that every day things seem worse. Tomorrow we will start the Donzole.
Today.... The sun will rise and strength will be found.