Hello, just a small update about my health status. I met with another reheumatologist who did actions very quickly when heard my GCA related symptoms. She was very helpful and very well informed about the PMR/GCA. She organised in the hospital immadiately a doppler ultrasound about my armpit, neck and temporal area. I was told that everything is ok, all of my veins is in very good condition. Yesterday they made a full body PET CT scan, thanks god everything is ok again. My CRP and sed rate values were normal. Overall my blood work is normal.
But, the doctor told me, that based on her experiences all of my clinical symptoms point to a GCA and she raised my Methylprednisolone dosage to 64 mg (equivalent to 80mg of prednisone).
Tomorrow i will go to an ophthalmologist and next week back to the rheumatologist again and to discuss the further steps.
I am on 64 mg since 5 days. My dry cough and my headache disappeared after two days almost totally, the jaw pain is improved too.
But unfortunately i developed some new symptoms. Crazy dizziness and nausea all day long, tinnitus, burning feeling in my lower leg. Blurry vision and small focusing problems that longs few minutes to few hours. Small tremble in my arms and legs 3-4 times a day.
Did somobody experienced these kind of symptoms during the big dosage steroid treatment? Can be these symptoms the side effect of the high dosage steroid and will improve when I lower my dosage? Thanks the answers!
I could not function on 60 mg. And reducing did help quite a bit, so have no fear. A lot of this stuff will go away. Prednisone is difficult to handle, but it does make a big difference in your outcome.