I thought when they do a mastectomy there are no more breasts for the cancer . However as in a friend of mines case when they do the surgery they say it’s 98 percent effective . They will never say 100 percent. This is because there is the chance that one little cancer cell can escape and start growing again somewhere . My friend’s has spread and she has been that way for several years . She refused chemo and radiation post mastectomy. She was very healthy too when she got it . Was negative for genes .She does however live a very full life. it’s about 9 years now.
to CW000 - this is Mulkey 518 - I truly understand your fear. I was off the hook when I just got my recent diagnosis of Breast Cancer Angiosarcoma. I prayed, cried, asked for prayers, begged for prayers, read the Bible (which was not a new thing) and refused to read up on the work "Angiosarcoma" because the Medical Oncologist had already told me that the cancer was Rare. Well after I did my crying and all I got tired of the same daily thing - so I conditioned my mind in that this is the battle I have to go through now. I has helped me a lot, but It is still ok to get into your feeings, but just don't stay there too long. When I was first diagnosed with Cancer I joined a very great support group called "ABCD" (meaning After Breast Cancer Diagnosis). They pair you with a cancer patient that has the exact type of cancer and treatment that you have. I had a great mentor and kept in touch with here for over 3 years after my cancer treatment. But when I got my new cancer treatment I went back to ABCD to try in get in contact with my old cancer mentor and to no avail - and also, they could not pair me with anyone that had Angiosarcoma because there were no patients in the group that had that tpye of cancer. However, you may want to google the organization to see if they have a mentor for you. Also, there is another support group called "ImermanAngels.org - Request for a mentor". You need to belong to a support group. God is Blessing you right now. Believe in the powers of Prayers. Believe is the operative word.
I will be sending prayers up for you.
Having a rare diagnosis is even more challenging than the already huge challenge you have faced. I hope things go well for you as there are so many new treatments available these days for all breast cancer subtypes. Some places specialize so travel could potentially be a factor.
I think MD ANDERSON in Houston is a go to for this diagnosis… if memory serves me…
I do not have experience with this myself.
I hope you find the one who can treat you medically as well as a mentor. Meantime come back here for support. 🌸
Having a rare diagnosis is even more challenging than the already huge challenge you have faced. I hope things go well for you as there are so many new treatments available these days for all breast cancer subtypes. Some places specialize so travel could potentially be a factor.
I think MD ANDERSON in Houston is a go to for this diagnosis… if memory serves me…
I do not have experience with this myself.
I hope you find the one who can treat you medically as well as a mentor. Meantime come back here for support. 🌸
This is Mulkey518 - I had my Second Opinion from my original First Breast Cancer Medical Oncologist who had presented my case to their medical group. She relayed the information on from a Medical Oncologist in the medical who had experienced with Sarcoma. His findings were because my tumor was 1.5 -and because I had cancer of the blood vessels that were contained in the breast that was removed — and because I was Stage 1 - and since my margins were clean — and since there are no Studies to support whether Chemo treatment will or will not help - his summation is to do nothing but monitor how I’m doing without taking Chemo. He stated why take me thru Chemo when there is no solid evidence of its performance. So now I have to mull over this doctor’s recommendation. However, Medicare will allow you to get 3 opinions when you have a rare cancer. So I have 2 other Medical Oncologist that I am schedule to see. Have anyone in this group heard of just monitoring a cancer diagnosis???!
This is Mulkey518 - I had my Second Opinion from my original First Breast Cancer Medical Oncologist who had presented my case to their medical group. She relayed the information on from a Medical Oncologist in the medical who had experienced with Sarcoma. His findings were because my tumor was 1.5 -and because I had cancer of the blood vessels that were contained in the breast that was removed — and because I was Stage 1 - and since my margins were clean — and since there are no Studies to support whether Chemo treatment will or will not help - his summation is to do nothing but monitor how I’m doing without taking Chemo. He stated why take me thru Chemo when there is no solid evidence of its performance. So now I have to mull over this doctor’s recommendation. However, Medicare will allow you to get 3 opinions when you have a rare cancer. So I have 2 other Medical Oncologist that I am schedule to see. Have anyone in this group heard of just monitoring a cancer diagnosis???!
Challenging situation to be in! I would find THE hospital that has an expertise in Angiosarcoma and get a third opinion with that group. I personally would not wait and see. The earlier the better to treat any cancer. Chemo is not the only treatment out there. You need a place that understands this rare cancer ( as you say).
Challenging situation to be in! I would find THE hospital that has an expertise in Angiosarcoma and get a third opinion with that group. I personally would not wait and see. The earlier the better to treat any cancer. Chemo is not the only treatment out there. You need a place that understands this rare cancer ( as you say).
You are so right - and that is what is so scary. Angiosarcoma is Rare and Aggressive. Thank you for your comment. I was also thinking on those terms as well.
You are so right - and that is what is so scary. Angiosarcoma is Rare and Aggressive. Thank you for your comment. I was also thinking on those terms as well.
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@cwilliane90, how are you doing? Have you discussed next steps and a treatment plan with your team?
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4 ReactionsThat's right you have to get every little cell.
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3 ReactionsI’m doing good physically but mentally…….
I have to do ct chest and abdomen scan next week
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5 ReactionsI would freak, too, if my breast cancer came back. You have to go back to the oncologist and find out what can be done.
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3 ReactionsHaving a rare diagnosis is even more challenging than the already huge challenge you have faced. I hope things go well for you as there are so many new treatments available these days for all breast cancer subtypes. Some places specialize so travel could potentially be a factor.
I think MD ANDERSON in Houston is a go to for this diagnosis… if memory serves me…
I do not have experience with this myself.
I hope you find the one who can treat you medically as well as a mentor. Meantime come back here for support. 🌸
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5 ReactionsThank you so much for the information and the kind words - it means a lot.
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3 ReactionsThis is Mulkey518 - I had my Second Opinion from my original First Breast Cancer Medical Oncologist who had presented my case to their medical group. She relayed the information on from a Medical Oncologist in the medical who had experienced with Sarcoma. His findings were because my tumor was 1.5 -and because I had cancer of the blood vessels that were contained in the breast that was removed — and because I was Stage 1 - and since my margins were clean — and since there are no Studies to support whether Chemo treatment will or will not help - his summation is to do nothing but monitor how I’m doing without taking Chemo. He stated why take me thru Chemo when there is no solid evidence of its performance. So now I have to mull over this doctor’s recommendation. However, Medicare will allow you to get 3 opinions when you have a rare cancer. So I have 2 other Medical Oncologist that I am schedule to see. Have anyone in this group heard of just monitoring a cancer diagnosis???!
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Hug
1 ReactionChallenging situation to be in! I would find THE hospital that has an expertise in Angiosarcoma and get a third opinion with that group. I personally would not wait and see. The earlier the better to treat any cancer. Chemo is not the only treatment out there. You need a place that understands this rare cancer ( as you say).
You are so right - and that is what is so scary. Angiosarcoma is Rare and Aggressive. Thank you for your comment. I was also thinking on those terms as well.
Check out MD Anderson . Rooting for you🌸