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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 10 hours ago | Replies (7051)Comment receiving replies
Hi
Ive been siffering with chronic paon since may 2014.
Very complicated situation. I had gallstones which went on for months to try and keep the pain i ended up damaging my liver with a paracetamol overdose. I was admitted to hospital for 5 days and had treatment. Dec 2014 i became really unwell with acute pancreatitis secondary to gallstones. I had surgery to remove my gallbladder. Unfortantely the pancreatitis didnt improve. I was rescaned to find i had a pseudocyst on my pancreas. I went home with painkillers. Feb 15 i was readmitted with extreme tummy pain to find the cyst had grown to 31cm in diameter and ruptured my spleen. I had further surgery. Having surgery left me open to infection which was inside the cyst. The cyst became inflammed infected and ruptured. I ended up with a PICC line where i received TPN feed at this point in 6 months i had lost nearly 6 stone. My condition got worse i went into retention had a cathata put in. More fluids pumped thru. I got transfered to a larger hospital that had a pancreatic unit. July 2015 i had a 9 hour operation to drain the cyst and connect it to my small bowel. Finally i started getting better and went home Aug 2015. Sept 2015 admitted again with vomiting. I had a small bowel obstruction caused by adhesions from previous surgeries again more surgery 4th one in 10 months.
I started finally getting better for real. I have to take creon now but i still get upset tummy most days.
Further tests and scans showed i have diverticulitis plus a hiatus hernia and an umbilical hernia. Plus chronic pancreatitis and IBS.
I have no idea what i can cant or should eat but everyday my tummy plays me up. Needing to go go loo 10x a day. Constant sickness feeling. Niggling pain that turns into horrible pain. Its making me stay at home more.
I really need help even if i can control this with diet. Also im type 3c diabetic
Replies to "Hi Ive been siffering with chronic paon since may 2014. Very complicated situation. I had gallstones..."
Hello @thulbert0, I see you have found a pancreatitis discussion already as well. Here is a discussion that you may want to check out and meet the other members talking about Diverticulitis too, https://connect.mayoclinic.org/discussion/diverticulitis-1/.
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@thulbert0
Welcome to our group!
My goodness, you certainly have been through a lot!!!!
I am so sorry for that.
I cannot relate to what you have been through and what you continue to experience.
I know you are not in the United States and I am not familiar with your medical coverage.
As you know, we are NOT medical people, just people who have had varied issues and experiences that we share.
Based on our personal experiences and knowledge, we make SUGGESTIONS only.
That being said, I'd like to make a couple of suggestions to you (since I don't know how medicine works in your country, I don't know how helpful this will be):
1. I do not know if the same surgeon did all your surgeries. It seems almost as if each incident was treated as a separate event rather than a result of previous issues. If possible can you thoroughly research surgeons who have experience with your issues and get another opinion?
2. It sounds like you need nutritional counselling, too. Someone who can tell you what would be helpful to eat with your stomach issues and diabetis. Probably a very low carb, high protein diet. But I am not sure.
3. With all your trips to the bathroom, I worry about you losing too much weight via water weight and loss of muscle. I am also concerned you might dehydrate which can cause all new problems you don't need. All that being said, perhaps you should add protein drinks to your daily diet (until you see a nutritionist). Many have NO SUGAR and can be mixed with a variety of milks. I know that here, in the United States we now have cow milk that is lower in sugar and carbs. We also have all sorts of milk made from different nuts.
I hope this helps a little!
There might be someone in this group or another group that might be more helpful with your specific issues.
Good luck and have a pain free day!!
Ronnie (GRANDMAr)