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Replies to "I met with my Rheumatologist ti discuss treatment for my recently diagnosed GCA. She feels Actemra..."
Autoimmune Diseases | Last Active: Mar 2 5:11pm | Replies (16)
Comment receiving replies
Replies to "I met with my Rheumatologist ti discuss treatment for my recently diagnosed GCA. She feels Actemra..."
@marieameehan Talk with your doctor about the side effects! When I asked my endocrinologist about a serious side effect to an osteoporosis drug, her response was, “you’re more likely to be hit by lightning than get the side effect!” So I’ve been taking the drug with no problems.
As for the prednisone, you don’t want to take it until you are in remission, believe me. I’ve been on it for 6 years and am now trying to get off. When you get to remission, what will help you stay there? I’m able to get off prednisone because my 2nd drug, Mycophenylate, will keep me in remission.
Think you could ask your doctor about the side effects of Actemera and the possibility of just using prednisone. Can you send a message through the portal this week?