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How to avoid flares

Polymyalgia Rheumatica (PMR) | Last Active: Dec 6, 2023 | Replies (21)

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@dadcue

Yes ... prednisone is amazing stuff. I had a good relationship with my rheumatologist. I said things about prednisone which I probably shouldn't say. Just to give you an idea about what was said --- I asked my rheumaologist why prednisone wasn't a "controlled substance?" My rheumatologist said she didn't want me to become "reliant" on prednisone but it wasn't addictive.

It was my ophthalmologist who prescribed the maximum amount of prednisone for uveitis. Since uveitis can cause vision loss, the maximum amount of prednisone was justified. Even my ophthalmologist said he didn't want me to feel "too good."

What was your bad experience on steroids? I'm a nurse so I have seen everything. Patients get steroids for many reasons. Fortunately, the PMR dose of prednisone is considered to be "low dose" and "relatively safe" if prednisone isn't taken "too long."

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Replies to "Yes ... prednisone is amazing stuff. I had a good relationship with my rheumatologist. I said..."

Well consider it was the 80’s. I was in neurophysiology at a children’s hospital and had lunged to catch a 3 yr old about to jump off a bed. Classic ruptured disc. But insurance required conservative treatment first - at home traction and steroids. I don’t recall the specific drug or dose but it was a 6 or 7 day blister pack. I had a psych response. Inappropriate uncontrolled crying, laughing, just wild emotional swings. Wild temp swings or at least indicators of such like sweating, flushing, then shivering. Two weeks later I was on the table having a hemi laminectomy at L5-S1. Total success to this day. But that reaction to steroids was one I hope To never repeat.

Well I have been a patient of my Rheumy for five years. He is also Pharm D and a super smart guy. My exact words to him when he checked in to see how I was doing on the 20mg prednisone, I told him I hadn’t had that much fun since the 70’s 🙂