She has an EEG and PET scan Friday and there's all these special instructions.... Usually I can do all that but now everything is impossibly hard. How can I keep her awake for half the night? She is scared and angry and confused one minute and then she will be just fine. But she's not fine; she'll never be fine the same way again.
I looked up the disease, and it's horrible! I thought no disease could be worse than the Alzheimer's that took my mother, slowly and completely, until she passed away months later. This Lewy body stuff seems worse.
But....
I will have to keep breathing. I have to keep looking for little ways to love her and this beautiful family we have.
And I will sing songs of hope rather than lose myself to sorrow. She is here now. She is different. But she is the same in all the ways that matter. Thank you all so much for listening.