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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: Apr 1 11:44am | Replies (6782)

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@laluzhiker

Hi All,

I've read a lot of your introductions so I know I'm in good company. I have lived in constant pain for 5 years now, both heat and cold pain. I was a mountaineer and apparently I hurt myself playing in the cold for too long, we believe. Sub zero conditions at high altitude for many hours, while, also, having Raynaud's, come to find out is not a good combination for, at least, this body. If I get chilled, even just into high 60s, I can go into a state of pain levels 8-9.5 for days with the only remedy but to heat my core to drastic temps. It caught me by surprise in August when the outside temps dipped to low 60s, and there I was for two days and two nights. I also have FMS as a secondary illness, requiring higher than I'd like doses of Lyrica and Cymbalta and others, just because the nerve damage that's caused during those times when I'm in that level of pain. It's not just in the mind, the body is actually tearing itself to pieces. So, I live at 5-7 pain level, whole body, every nerve, and take as much Opiate as they'll give me, but you have to know, nothing touches Cold Pain (unless you guys or gals know something I don't). I've certainly read all I can on it, and the genes that express it, etc. They are working on drugs to stop it, but will probably charge an arm and leg for them because they are for the certain kind of chemotherapy drug that expresses TRPM8, the cold pain gene (plus another one).

Anyway, I'm not looking forward to winter. I moderate our FMS support group, but I had to tell them what I was thinking that I don't know if I can handle doing this again. Of course they told me to leave the state, blah, blah, so easy to say. I just sent off for Quicken Will maker, but of course I'm a fighter. It's just when I was inside those two days in August, at true 9.5 for the second day, I knew I was ready. Well, I do have a Functional Diagnostic Nutrition doctor is very good and is investigating with me, a few new appointments to go to. Anyone heard of NES? My psychotherapist's dogs tumor magically shrunk to nothing just drinking coded water. What the heck, I'll even try that...

Well, I hope you all find your health and answers, and path to Love.

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Replies to "Hi All, I've read a lot of your introductions so I know I'm in good company...."

Try Gene sight testing, you might get some answers

@ laluzhikerIt seems so easy to just say move but only if life was so simple non of us would be here talking about resolutions. I do not have experience with your diagnosis but do know what it’s like to be in constant pain and I understand that even the strongest get weary from time to time.

Praying you find relief soon.
Dawn