← Return to How long has PMR lasted - I'm trying to find the average

Discussion
Comment receiving replies
@jpst28265

About 2 months ago, after having experienced the serious suffering most or all of you have described, I was diagnosed with PMR. What I read today on our PMR support group, prompted me to offer comment for the first time. I will be 73 years old in 2 months and have been very active physically and eating well for many years. Since joining our PMR group and reading most of what has been shared, I have learned a lot, including the possibility of not having a pleasant future as I get older. Although, still being new at this, it appears that I have an excellent Rheumatologist. He stated me on 30 mg and after 4-5 days my pain was gone and I keep feeling better and stronger. In a few weeks, I will reduce my dosage by 5 mg every week until I get down to 10 mg. I have a phone consultation with my rheumatologist about every 2 weeks. I have a Lab test every month, and in a few months, I will have a bone density test. (all this as per my rheumatologist instruction). Based on what I have read on our PMR support group, including the importance of "good Nutrition" and "exercise", I have decided to focus on this and also to keep a daily log. I have learned that PMR is complicated but I have decided to do my part and everything in my power to get the best result and hopefully continue to enjoy getting older. I also decided that if it does not go as well as I hope, I will accept the outcome and know that I have done my best. I feel optimistic but somewhat nervous, especially the possible negative consequences of lowing the dosage. I used to eat healthy but now, I eat extremely healthy food. I used to drink healthy smoothies every day but now I have 2 large mug of even healthier smoothies every day (Almond milk and/or Chocolate Premier Protein drink, 1 banana, (kale or baby spinach or broccoli), pure Cocoa powder, almond butter, low fat Greek yogurt, Strawberries or blueberries or pineapple, TUMERIC, CHIA SEEDS, FLAXSEEDS), I also drink a lot water with lemon which reduces cholesterol and inflammation, and I also add a little of ginger - I big job each day). I started with walking slowly 6 miles a day and then progressed from there. I now walk 4 miles fast and run 2 miles each day. I also do floor and stretching exercise, and light weight training 5-6 days each week. So far, I have not gained weight and I feel great and seem to feel better and stronger. Of course, based on what I have read, everything can change quickly and I read that the situation and outcome may be different for each person. PS: For me, I take Prednisone only once a day at 7am and I am completely free of pain 24 hours a day. We will see what happens when my dosage will start going down. Sorry for the long email. I hope this helps a little. Thanks for all the information and experiences you share.

JP

Jump to this post


Replies to "About 2 months ago, after having experienced the serious suffering most or all of you have..."

Correction from my last comment. My rheumatologist started me on 30 mgs and in a few weeks, I will lower the dosage by 5 mgs each week, until I get down to 10 mgs. Then we will reevaluate.

JP

We're all doing our best to maintain good health. Have you investigated oxalates which can cause an arthritic reaction in some people? Before my PMR diagnosis I realised my new "healthy" diet was extremely high in oxalates from the "superfoods" I was eating.

Very high in oxalates are baby spinach & swiss chard, beetroot, almonds, turmeric, cocoa, most nuts, whole grains, hydrolysed collagen, etc. These were all things I was eating in fairly large amounts before getting PMR. Oxalates bind to calcium which reduces its absorption and can cause kidney stones in some people. They can also cause calcium-oxalate crystals in joints and the tissue surrounding them, causing an inflammatory response.

If you haven't investigated oxalates & lectins (anti-nutrients) and the foods that are highest in them, it may be worth a look.