Chronic Pain members - Welcome, please introduce yourself

Sheliagawne Ive had fibromyalgia since the 90,s they didn't then and still don't believe we have fibromyalgia nor do they know what causes it or cure but for me medicine he snt the answer I take extra magnesium ,msm,malic acid in a product called Fibro Malic listen to your body rest ,say no when tired You,ve got the right idea .

@oldkarl
I've tried to get an appointment, for my back, 3 or 4 times in Florida.
I've been turned away each time.
Apparently, the accept only a certain number of patients with certain ailments.
So, I'm not surprised.

Feel good!
Ronnie (GINSBERGr)

@capausz
I am really not surprised that Mayo does not take Medicare.
Many doctors no longer take Medicare or they charge you the fee and they refund after they get paid.
I remember my mother-in-law having to change docs several times.
I don't think your PCP verbalized correctly.
I don't think they want to 'make' money off of Medicare, I think they just want to get paid.
Many docs say that either Medicare is very slow to pay, if they pay at all.
Regardless, I am sorry you have to find another doctor.
Good luck!
Ronnie (GRANDMAr)

@gingerw
Hi!
I'm another Fibro Warrior.
I was diagnosed over 20 years ago by a physiatrist (NOT psychiatrist).
Since then, I was diagnosed by several other docs.
One doc who got me very angry was a chiropractor.
He broke down the meaning of the word to explain the syndrome away.
I also remember watching one of the hospital/medical shows on TV.
A lady who was in a horrible flair up that she needed to go to the hospital.
Even the docs in the hospital didn't believe her and they released her.
She was back at the hospital.
After lots of research and testing, the docs changed their attitude.
You know what is said......if you can't see it, test it or feel it, it doesn't exist...........NOT!!

You are not crazy, you are not making up the pain, yes, your pain may be more bothersome on different days places.
Hold your head up, none of this is in your head.

Best of luck!
Ronnie (GRANDMAr)

@grandmar Great statement.

@oldkarl
Thank you!
Ronnie

Hi @sheilagawne,

Before anything else, I want to assure you that although fibromyalgia may not be easy to diagnose, it is a very real condition – it's a chronic pain syndrome that experts believe is caused by a malfunctioning nervous system.

I’m sorry to hear that you had difficulties receiving an appointment at Mayo Clinic. Unfortunately, because Mayo Clinic has more requests for appointments than available openings, other factors do come into play. And, the complexity of the medical condition and, for less complex conditions, the availability of care closer to home are also factors.

I sincerely encourage you to view this Mayo Clinic article about "Fibromyalgia misconceptions: Interview with a Mayo Clinic expert" https://www.mayoclinic.org/diseases-conditions/fibromyalgia/in-depth/fibromyalgia/art-20048097

@sheilagawne, aside from medication have you considered trying complimentary therapies like acupuncture? Have any family members been diagnosed with fibromyalgia in the past?

Hi. I am JoAnne who just joined the group. I am 64 and have fibromyalgia and have just been diagnosed with pelvic congestion syndrome. Looking forward to discussion.

Welcome @mark13michael.

You might also be interested in viewing this Mayo Clinic Video Q&A on Connect, https://connect.mayoclinic.org/webinar/video-qa-about-pelvic-congestion-syndrome/ where you can learn more about

– Pelvic congestion syndrome — why it is so underdiagnosed and misdiagnosed
– How pelvic congestion syndrome causes chronic pelvic pain and the symptoms
– The role an interventional radiologist plays in the treatment of pelvic congestion syndrome

Yes thank you I did. Now I just need to get treated.