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Neuropathy Symptoms but No Pain

Neuropathy | Last Active: Dec 7, 2023 | Replies (37)

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@ray666

Good morning, pah17 (@pah17)

Gabapentin has never come up in conversations with my doctors. I supposed I could have asked, and still may, but I'm left with the conclusion that my doctors don't think that Gabapentin is the proper medication for me. Drilling down a bit more, I wonder if they've never mentioned Gabapentin because pain is not one of my PN symptoms; poor balance and poor gait are––poor, and sometimes I think getting poorer. Like so many of us, I keep looking for "triggers"––What sets off an exceptionally difficult episode of my particular brand of PN? I've never managed to identify a "trigger" that survives repeated scrutiny. For the longest time, I believed that my "exceptionally difficult" episodes were set off by dark vs. light (sunrise, twilight, half-lighted rooms, etc.). I'm no longer so sure. But I keep looking––What is that trigger?

As far as cramps going hand-in-hand with neuropathy… I'm sure it's possible, but so far cramps have not been part of my PN experience, nor has cold vs. warm temps. I'm sure others will post on this, and I will read what they say with great interest.

Ray (@ray666)

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Replies to "Good morning, pah17 (@pah17) Gabapentin has never come up in conversations with my doctors. I supposed..."

Ray…you are likely correct regarding lack of light and the negative affect on your balance. The vestibular system controlling balance is made up of 3 components…your inner ear mechanisms, your eyes and nerves in your feet. These all work in conjunction to keep you upright. When part of the system is damaged , the others try and compensate. In many cases , the eyes work overtime to try and offset the other deficits. As the light fades, the eyes can’t help as much…and the balance falters more. I think this is why it’s harder to stand with your feet together with eyes closed than when open.