Oh gosh. What a terrible experience. I, too, had a spinal cord stimulator and kept it for 2 years. The first year gave me a bit of relief, not great, but I got no relief the second year so I had it removed last August. The stimulator was painful all the time. I'm so happy to be rid of it and I feel so much better now. You need help. I'm so sorry your neurologist isn't responsive. Is there someone else you can reach out to for help?