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Post covid neuropathy/bfs?

Neuropathy | Last Active: Nov 5 12:16pm | Replies (60)

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@johnbishop

Hello @lindawilson4443, Welcome to Connect. You are so right. Dealing with neuropathy and it's related symptoms can really be hard on our minds. About the only thing that helps me with the mentally disabling affects is to keep my mind busy so I don't think about it. I also have idiopathic small fiber peripheral neuropathy but it's not COVID related and I've been dealing with it for over 30 years now. I am fortunate that it's just numbness and a little tingling. I posted my neuropathy journey story in another discussion here - https://connect.mayoclinic.org/comment/310341/. One suggestion I have and it's sounds like it's the reason you came to Connect, is to learn as much as you can about your condition and treatments that are available that might help.

There is another discussion that you might find helpful.
--- Peripheral Neuropathy and benign fasciculation syndrome.: https://connect.mayoclinic.org/discussion/peripheral-neuropathy-and-benign-fasciculation-syndrome/.

Some sites you might find helpful for learning more about neuropathy and treatments:
--- Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/living-well/
--- Foundation for Peripheral Neuropathy YouTube Channel has a lot of neuropathy webinars - https://www.youtube.com/@foundationforperipheralneu4122/videos
--- Neuropathy Commons - https://neuropathycommons.org/neuropathy/neuropathy-overview.

If you don't mind sharing, what symptoms cause you the most problems?

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Replies to "Hello @lindawilson4443, Welcome to Connect. You are so right. Dealing with neuropathy and it's related symptoms..."

Mostly my left foot started in big toe over a year ago and now my entire foot. Also a little in my right foot. Starting to have pressure in my eyes that is new.