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DiscussionAnyone with carcinoid tumors in lung and stomach?
Neuroendocrine Tumors (NETs) | Last Active: Apr 8 8:04am | Replies (12)Comment receiving replies
Replies to "Diana, Thanks for your response. I’ve been just hanging waiting to get information about diagnosis and..."
Hi Emily,
My strength after the lobectomy was slow at the beginning. My surgery was September 20, 2023, and I’m back at exercising at least 2 miles in the treadmill in 1/2 hr. When I finish I’m a little short of breath, but ok. I considered myself an active person, but I have noticed I’m a little bit slower these days. I am not in oxygen, nor do I need an oncologist, or any additional treatments, since the carcinoid tumors had not spread, which I’m grateful for. The time between my biopsy and surgery was about one month, since I needed lab work, additional PETCT scan to ensure no surprises, and oxygen level testing. I only stayed overnight after the surgery, and had my follow-up appointment within 10 days after the surgery. Surgery was performed at St. Francis Hospital, Hartford, CT by Dr. Kachala. He is wonderful, attentive to your needs, compassionate, with a vast experience in robotic surgery (which is the way I went), willing to spend as much time with you as you need. St. Francis hospital staff is also fantastic! I will have CT scans every 6 months at the beginning to ensure everything is ok inside, and to monitor the other nodules on my right lung. My next appointment is in March 2024.
I am so grateful for this forum that Mayo Clinic offers because I am able to hear from others, their journey, and the opportunity to ask additional questions of symptoms we have.
Best of luck to you!