Thank you I will follow up. My appointment went okay. No new Pagets yet.... But my questions were unanswerable because the UW doesn't seem to know anything. I asked about treatments or hospitals or such that are studying Pagets and the PA just looked at the ceiling I told her I feel so alone. She lost it and said "do you want a second option"? I said yes so now I am going to head to Swedish Hospital. Next will be Mayo.
I am also seeing an ND that is helping with general cancer treatments with supplement's and dietary things. It has been helpful and hopefully is why I haven't had a reoccurrence. It is better than waiting for it to come back.