We are actually located in Northern Europe and unfortunately we don’t have centers of excellence here. However, my mother’s oncologist has worked in the US for some time.

Gencitabine has not been discussed. Is it possible that Folfirinox might have a greater effect after 12 doses, maybe it just hasn’t had enough time to have the full effect?

My mother experienced ascites and it’s only then she felt that something’s wrong and turned to the doctor.

From my mother’s experience I have understood that CT is not very reliable and every doctor interprets the results differently. When she had the first CT, the doctor in charge said that there is one met in one lung and that there are benign hemangiomas in the liver. Her first oncologist said based on the same CT that there is no met in the lung. Then she was given another oncologist, who said based on the same CT that there are mets in both lungs, liver and lymph nodes (which turned out to be not the case regarding the lymph nodes).

To conclude, my mother has received very mixed information and we feel confused. She sees her oncologist in every two weeks for about 5-10 minutes. Unfortunately she doesn’t really want to ask any questions. I think it’s because she’s afraid she’ll be given more bad news. I just wish we knew more about the mucinous type and how it can change my mother’s condition.