← Return to First Bite Syndrome after unilateral Carotid Paraganglioma surgery.
DiscussionFirst Bite Syndrome after unilateral Carotid Paraganglioma surgery.
Neuroendocrine Tumors (NETs) | Last Active: Dec 8, 2023 | Replies (14)Comment receiving replies
Replies to "In '92 I was diagnosed with Stage IV Non-Hodgkin's Lymphoblastic Lymphoma (Diagnosed at age nine). The..."
30 years is amazing. Wow! I am in the fifth week :-). First few bites, bigger and harder the byte more pain it causes. Anything sour or spicy is terrible. Keep chewing and it gets better after 10 - 15 seconds like you said. Altoid mints could be used as torture devices.
Welcome, @jtaylor14955. It gives great hope to hear from a stage IV survivor 30 years out! Did you have other treatments besides surgery? Was it this discussion that first introduced you to first bite syndrome or how did the symptom you were experiencing come to finally be labelled as FBS?