I have had this problem for years off and on. I also can’t have simple breezes like a ceiling fan on near me and showers can be brutal, causing me to resist proper hygiene in exchange for temperature control. I live with someone who can’t keep cool so I have had to take jobs in other homes so I can keep comfortable and not impose on my family. I have to wear layers no matter what and I avoid air conditioning and I wear a big sweatshirt and boots for grocery shopping and then I undress in the parking lot into my regular clothes and shoes. Sometimes I need flip flops after that exercise.

You learn to adapt.

Drs are only guessing. Mine is pretty spot on and said my current issue is probably related to fluctuating blood pressure and blood flow issues from my anemia/mystery illness.

I noticed my sodium levels are sometimes directly involved, so electrolyte management is helpful for minimizing problems.

I have to ride my bike or go for a long walk to warm up for the day and can get pretty sick if I don’t get it done.

Where I live sees the wrong solar so I see the sun rise and then it’s gone. Again, taking my physical self into the sunshine is practically life or death.

When I eat ice cream, I get those shivers and sick feeling to the point where I’m thinking I might be lactose intolerant as well(?)

My main diagnosis is anemic renal insufficiency.

Nobody seems interested to know anything more than that. It’s a chronic illness and it’s my job to minimize it.

Proper diet is helpful and each one of us has different foods and minerals we can and can’t have. I’m teaching the drs. They order tests and then we make little changes to improve life quality.

I can’t imagine having hypothermia at home all the time. But if that is possible, I bet I’ve had it. I definitely have a lot of bedding in different thicknesses and I wake up in the night sweating and or freezing.

But I attribute this to 1) toxins exit via sweat, especially when I have compromised kidneys and 2) I’m always low on sodium and have to supplement with salt tabs and sodium bicarbonate so I have more body odor than I did when I was not supplementing sodium. But I almost died as my organs were shutting down during a stint with a bad infection requiring serious antibiotic infusions for 6 weeks and I’m still recovering from that infection AND from the treatment for it.

I have to be very careful to avoid illness or infection and I’m labeled as a “frequent flyer” and “drug seeker” because I see drs often. With a chronic illness, I gotta keep advocating for myself. But I can tell my primary care dr has staff who will be happy when I finally pass away and quit leaving messages lol lol !

Please let us know what you find after your full bloodworkup and dr review of your results.

COULD BE ANYTHING