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@2catmom

Hi @mas0415

I’m going to venture into WAG (wild ars guess) territory

You might consult a vasculitis dermatologist or possibly a rheumatologist who sees cutaneous vasculitis patients.

Your LR, especially the legs looks like mine from cutaneous polyarteritis nodosa. (Please note the “cutaneous” is an important part of the name – its symptoms are relatively mild compared with systemic polyarteritis nodosa and most often managed by dermatologists.) My autoimmune LR is more pronounced with heat e.g. when coming out of the shower.

And I also have Raynaud’s-like cold fingers and toes. They don’t change color, but the false-color infrared images (FLIR camera) were persuasive for my rheumy!

If you and your medical team decide to pursue cPAN as a possibility, might you be near one of the experts that co-authored this paper https://pubmed.ncbi.nlm.nih.gov/29136340/

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Replies to "Hi @mas0415 I’m going to venture into WAG (wild ars guess) territory You might consult a..."

Good advice. Skin biopsies can confirm the diagnosis of vasculitis
and point to appropriate treatment. A dermatologist at a referral center may be the best specialist to make the diagnosis and head the team management.

Thank you for sharing, I will look into this!