So much thanks to everyone who responded. You've given me some good specific questions I can ask my doctors.
I was scheduled to have an esophagectomy last January, about 2 months after completing chemo and radiation treatments. My surgeon never mentioned anything at the time about cardiac and pulmonology testing prior to surgery. At any rate, I cancelled the surgery because 1) I was feeling terrible and was still losing a lot of weight, and 2) the PET scan and biopsy results showed no evidence of any cancer still remaining. At the time I felt strongly that I would not survive the surgery.
I had a series of cardiac tests and pulmonary function tests done early last summer. They didn't find anything seriously wrong. Last week, a CT scan and biopsy following an endoscopy showed no new developments, although there's still a thickening in my esophagus at the tumor site.
I don't know if I will get the esophagectomy or not. My surgeon is not pushing it like he was last December. He is monitoring my scans and tests. He is concerned about cancer cells that can only be detected through a PET scan. Insurance will only pay for one PET scan per year, so that won't happen until next spring.
Once again, thank you so much for suggestions and the stories of your experiences. My big concern right now is the chest pain. I have an appointment next week with my onocology radiation doctor. I will bring up some of the things discussed here.
My husband ended up having this kind of chest pain after the radiation also. I took him to the emergency room, thinking he was having a heart attack. They said it was referred pain that actually was coming from the esophagus and surrounding areas from the radiation. The chemo and radiation had done their job and the pet scan was showing no new “hotspots”. At the time their EKG showed nothing wrong with my husband’s heart. But I remember he had excruciating chest pain. The pain medicine they gave him eased it up and actually, I believe they gave him Nexium, which helped as well. They switched him later, too, I believe, Pepcid. And Reglan. That helped a lot. If you have had all your cardiac and respiratory tests come back good then I would proceed with the surgery. My husband is only 57 years old and felt The surgery was the final step of the three-part treatment. Even though slightly delayed from the cardiac surgery in the midst of everything, he is glad he proceeded with it. It’s been a very different recovery than the cardiac surgery but he’s on the other side of it now. The doctor say it’s a miracle that he’s part of the 20% that successfully get through all three phases of their treatment plan so successfully. We know The lords, part in this whole situation, and know that he has provided miracles. And he can do the same for you. Whatever you decide, I pray for God‘s healing upon you. This isn’t an easy disease to have. But it sounds like all your cancer is gone. The surgery removes all the dead tissue and helps reduce any possibility of cancer returning in that area. It is slightly altering in his life for eating patterns, etc. but he is maintaining weight and all his tubes and lines are gone and he is eating anything he wants to. He is getting strength through his cardiac rehab three days a week and able to live life and get out and do things. I pray that soon you’ll be able to do all that you like doing again. blessings on you!
Patti