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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 2 hours ago | Replies (7051)

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@oldkarl

About Chronic Pain. There is a real disconnect between almost all clinics and what they say about pain and experience of patients. No matter how much information you are prepared to give the doc, they almost never will listen to it or read it. Big clinics like Mayo, BU, City of Hope, Sloan Kettering, etc., have in their protocols that the medics are not to look at this information. This makes their diagnoses very suspect on the face. Additionally, many smaller clinics will produce fake documentation of lab reports, etc. just to justify their own preconceived notions of the patient. That means that the patient must always question what the doc says is truth, as Giuliani says. The best friend a patient has is their own journal of events, reports, discussions, appointments, witnesses. The observations of your spouse and/or best friend will be exceedingly helpful. If everything fits together, and they all agree somehow, you are extraordinarily blessed. If they don't, then you yourself have the task of sorting it out, and your own journaling will be a huge guidebook.

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Replies to "About Chronic Pain. There is a real disconnect between almost all clinics and what they say..."

@oldkarl - I take a notebook to all appts, have a list of questions, get a copy of all test results directly from the testing facility, etc. Years ago, when moving to a new dermatologist, I was pretty angry to read false records in the copy I received. Each patient has to be their own advocate, and sometimes that includes having a family member or trusted friend along.