Connect
← Return to Anti-phospholipid Syndrome
Discussion
Autoimmune Diseases | Last Active: Dec 4, 2023 | Replies (4)
Comment receiving replies
My ER visit in Sept 2022 showed blood clots in my lungs and legs. A few days later a hematologist told me that I have APS. After a month or so on Coumadin, my INR numbers normalized. Since then all the dr does is comment on follow-up bloodwork, every 3 months or so. I know enough to manage my vitamin K foods and I wear compression stockings, but aside from that I have not been provided any additional procedures or advice to manage APS.
Replies to "My ER visit in Sept 2022 showed blood clots in my lungs and legs. A few..."
Connect
@theal This information from the Mayo Clinic explains everything you want to know about APS. It even has a section on self-care and what foods and supplements to avoid while you’re on Coumadin (warfarin).
https://www.mayoclinic.org/diseases-conditions/antiphospholipid-syndrome/symptoms-causes/syc-20355831
Unfortunately in health care today, everyone has to be an advocate for their own care. That means knowing as much as you can about your disease, being prepared with good questions when you see the doctor. It’s not easy, but it is do-able.
You can start by keeping a journal of anything new or different with your health and making a list of questions you want answers to. Think you can do that?