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← Return to Anti-phospholipid Syndrome
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Autoimmune Diseases | Last Active: Dec 4, 2023 | Replies (4)
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@theal This is your first post so welcome to Mayo Clinic Connect! I’m so glad you found this site to get answers to your questions.
You may want to check out these 2 discussions on APS. There is lots of good information. And other members will give you some answers based on their experiences.
https://connect.mayoclinic.org/discussion/antiphospholipid-syndrome-hughes/
https://connect.mayoclinic.org/discussion/aps/
When did you first have blood clots? (You mentioned ‘no new blood clots). Are you followed closely by your doctor?
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My ER visit in Sept 2022 showed blood clots in my lungs and legs. A few days later a hematologist told me that I have APS. After a month or so on Coumadin, my INR numbers normalized. Since then all the dr does is comment on follow-up bloodwork, every 3 months or so. I know enough to manage my vitamin K foods and I wear compression stockings, but aside from that I have not been provided any additional procedures or advice to manage APS.