@grandmar

Looking forward to hearing back from you later today after your appointment! I hope you get some encouraging news.

Teresa

Oh, dear@grandmar, I will be sending warmest thoughts, prayers, and hugs your way today. I certainly hope that you will be on the path to a better quality of life very, very soon. I am a fairly new volunteer mentor here for Mayo Clinic Connect. Several group discussions are called "home" by me. Last week was one of the worst for my Fibromyalgia. I can definitely relate to your statement about the meds just barely touching your pain. You are not by yourself in this battle. We stand with you. Please let us know how you are doing. We would very much like to keep in touch. Virtual hugs to you!

@hopeful33250
Thank you Teresa!
My appointment is actually tomorrow.
Any info will be welcome info.

The hospital actually called me this afternoon to see how I am doing after the mylogram CT.
I told the nurse (and I checked to make sure it was a nurse), how awful I feel.
I told her how painful the procedure was and that it was the worse pain I ever experienced.
She asked if I did what I was told to do regarding laying flat in bed for 2 hours.
I told her I did it before leaving the hospital and that I've basically been sitting in my chair since.
She told me she never heard anyone complain of pain (other than the injection site and injection itself.....whimps lol).
She couldn't understand.
I told her the doc told me that the chemicals used in the mdylogram could have inflamed already acutely flamed nerve endings.
She hadn't heard of that, either. But if the doc said so, it must be!

Thanks for her call but worthless!!!

Here's to a pain free day for us all!
Ronnie (GRANDMAr)

@grandmar Hi Ronnie,

I suppose the call was worthless to you, but I hope that she learned something about how everyone deals differently with tests depending on their root problem. I hope she will remember the lessons that you taught her when she makes her next follow up phone call!

Teresa

@im so sorry your in so much lain I ditto last night Finally took a Advil P.M slept till 9:30 but feel horrible Did you ever think of Shingles with that electric shock ? Shingles can live inside the body and not all come out but very painful just askking Hope your results will show a treatment you can get Blessings Linda

@grandmar and the other people I feel I know from reading their postings, forgive my negative attitude but I no longer believe in "if the doctor said so, it must be so." I feel we also bear some responsibility to investigate what the doctor tells us and prescribes for us. This is time-consuming and sometimes useless, but I'm really tired of sometimes feeling like a pawn in the Medicare game of guaranteed payment. @cognac

@cognac I couldn’t agree with you more. We each have a responsibility to take charge of our health.

@cognac
I agree that we must be our own advocates. For me, it meant researching for the best doc I can find.
I have also researched procedures before they are performed.
However, we are not medical experts. For that reason, I go to the docs to hear what they say and suggest.
I always have the opportunity to get other opinions and reject suggestions.
Ronnie

@cognac Absolutely so. And, we must learn to deal with the openness of our society. Sure we should protect privacy, but when our privacy inhibits the ability of others to learn about themselves and the world, we have done something wrong. As I search for definition of my illness I have seen cases of lab laziness that cost me a diagnosis; doctors changing lab reports to me their own naivete; nurses giving opiates to a patient (me) after surgery when she knew it would send me off psychiatrically, and more. Then I wrote up my med experience and reports and diagnoses and put it all on dropBox https://bit.Ly/1w7j4j8