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Difficulty regulating body temperature. Does anyone else have this?

Autoimmune Diseases | Last Active: May 17 1:29pm | Replies (54)
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@ladyaceintx1

The Rheumatologist said I was negative for Lupus although I had a positive ANA. My GI said I'm negative for Autoimmune Pancreatitis because I failed my 47 day steroid trial although we still have no known cause of my chronic pancreatitis. I have vague, intermittent symptoms such as spontaneous rashes etc that would indicate an autoimmune condition but I can't seem to find either the right rest or right doctor to get a diagnosis. I noticed more changes after a bad case of COVID-19 in Dec. 2021, but again, all my doctors just use the term "inconclusive" evidence and don't pursue it.
I feel frustrated but mostly just try not to worry about what I may have but can't diagnose.

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Becky, Volunteer Mentor | @becsbuddy | Dec 2, 2023

@ladyaceintx1 You might check into a comprehensive medical center/university hospital near you. The doctors there usually learn/know more than local doctors. My experience with my undiagnosed autoimmune disease bears that out. Local doctors couldn’t tell what was wrong when they saw my MRI. They didn’t know what to do. My husband called the university hospital 1 hr away and they said to come down. Looking at the MRI, they knew exactly what was wrong and I’ve been under treatment ever since. Keep a journal of all your symptoms and make an appointment!
Do you think you can make some calls on Monday?

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