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Optilume Balloon Treatment for Prostatic Strictures

Prostate Cancer | Last Active: Jun 27 1:05pm | Replies (20)

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@davyde

Yes, I had a Prostatectomy in May of 2021 based on the recommendation of two Urologist, they both suggested to go with the surgery as it was early enough that there was a very good chance of getting all the cancer and go with the radiation as a backup plan. The first stricture formed two months after surgery. I had the first dilation in July, followed by another one in September, October and November, then the first laser surgery in December. In January my PSA was higher than it should have been and my Urologist referred me to a Radiation Oncologist. Over the next six months my PSA steadily rose, in July of 2022, the Oncologist started me on Hormone Therapy (ADT) followed by radiation to start two months later. On the morning of September 27th, (my 70th birthday) I suffered a stroke believed to have been cause by the drug used for the ADT. I was airlifted to the ICU in Thunder Bay and fully recovered, radiation started the end of the following week, I had 33 treatments. Incontinence started immediately after the catheter was removed after the prostatectomy. I faithfully did Kegel exercises, at least four hundred a day but they didn't help much. The plan is to install an AUS (cuff) if the Optilume is successful. When I don't have the supra pubic catheter connected to a drain bag, it's plugged off and all urine flows through the urethra, even when it's connected to a drain bag, there is still a slight bit of leakage. The supra pubic catheter was put in only to use if a stricture formed and blockage occurred due to my poor history of having them develop so quicky but I'm using it and my Urologist is okay with that.
Dave

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Replies to "Yes, I had a Prostatectomy in May of 2021 based on the recommendation of two Urologist,..."

Hi Dave,
Update. Saturday night I went into urinary retention again and went to the ED at Mayo Clinic Phoenix. I decided to go with the SupraPubic Catheter instead of more risky surgery and increased incontinence which has gotten worse. Good news is my incontinence has ended ... bad news is I have a more permanent catheter. Apparently I will have to have the current suprapubic I rec'd replaced with a larger catheter in the next month.
The reason for this message is to ask you what supra pubic supplies have worked best for you. I am talking about the leg bag and overnight bag. The leg bag I rec'd from the hospital has straps which are a not that comfortable. I have seen on Amazon some sleeves that you can pull up your leg and then place the leg bag into it. Looks better fitting to me and the reviews are encouraging. I wondered what you found worked best for you mostly in the leg bag area. Thanks for your insights.
Bob