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Gabapentin side effects?

Chronic Pain | Last Active: Jun 19 12:40pm | Replies (795)

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@artscaping

@romans8 and @carolm23 Good morning to both of you. I want to join you two in your search for alternatives for Gabapentin that will help manage the progressive reality of SFN pain.
My loyalty to Gabapentin has been 10 going on 11 years. The brain fog from the medication has increased due to aging and cognitive decline. In essence, my life was shrinking and I was in denial as to the cause.

About 4 months ago, my PCP and I had one of our "health partner" sessions. We have also been together for 10 years and counting. She recommended that I taper off the 2400 mg a day of gabapentin down to 200 mg at bedtime. As a replacement and with her support I have increased my daily medical cannabis and added an as needed dose of Ibuprofen (600 mg). This is exactly the medication program I used two years ago for my second TKR surgery when my orthopedic surgeon took a special interest in my SFN condition. This collaborative relationship continued post-surgery when my PT at the orthopedic center discussed her exercise choices with my MFR (myofascial release) therapist. Because everyone was working together, I had an amazingly positive recovery with only modest discomfort.

Mayo Clinic is well known for its team approach to health care. By inquiring and explaining I was able to create the same team at three different facilities. Recently I read that Mayo Clinic is now making this kind of collaboration possible for others.

Give it a try.....you may be surprised how helpful the "team" you create can be for your current distress. Don't hesitate to ask questions.. I am here for you.

May you be safe, free and protected from inner and outer harm.
Chris

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Replies to "@romans8 and @carolm23 Good morning to both of you. I want to join you two in..."

@artscaping
Thank you for responding. I am so glad to hear you have found the right regimen for your pain control from SFN. I have been on the same dose of 600mg/ day of Gabapentin for over 3 years. Side effects have been steadily increasing, especially cognitive impairment. I now have been diagnosed with gastroparesis as well. I have pudendal neuralgia as well as SFN, and do need pain management. I have been with Mayo Clinic for 3 years, seeing GI, PT, pain management psychologist, pain management course, pudendal nerve block from anesthesiologist, and a host of tests. At the end of 2023 they are no longer taking my insurance , so I now have to start over with new doctors. I would love to get off Gabapentin, Your experience with medical cannabis is encouraging. I have only tried a small amount of CBD oil and that was several years ago, and it made me very irritable, Do you have any side effects with it. I can’t take ibuprofen due to stomach irritation. I would also love to be able to locate a pt who does myofascial release. I appreciate any fir their info you have to offer. Thx.