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@covidstinks2023

My Rheumatologist didn't act like it was a big deal and didn't talk about it. I was diagnosed actually years ago by a G.I. doctor when I mentioned to him about my hands and feet being so cold but my body was warm. He said I had Raynauds. That was it. I ignored it over the years, but, it was on my medical record. I will say, it has gotten worse since COVID last year. Sometimes my fingers and toes turn blue under the nail and feel like ice. It hurts my hands to pick up ice to put in a cup and I run warm water when I am filling ice glasses and put my hands under it because it is painful. Getting in a tub of hot water with epsom salt and putting my hands down in the water & feet will warm them up pretty quickly. I don't have a flare with this every day....it's off and on. Raynauds does tend to run along side of Systemic Lupus and several other autoimmune diseases. I have borderline Systemic Lupus, Fibromyalgia, Arthritis, both thyroid diseases & long Covid. Praying you get some answers.

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The Rheumatologist said I was negative for Lupus although I had a positive ANA. My GI said I'm negative for Autoimmune Pancreatitis because I failed my 47 day steroid trial although we still have no known cause of my chronic pancreatitis. I have vague, intermittent symptoms such as spontaneous rashes etc that would indicate an autoimmune condition but I can't seem to find either the right rest or right doctor to get a diagnosis. I noticed more changes after a bad case of COVID-19 in Dec. 2021, but again, all my doctors just use the term "inconclusive" evidence and don't pursue it.
I feel frustrated but mostly just try not to worry about what I may have but can't diagnose.