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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)
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@terrycooper

Thank You!

It was found during an endoscopy on November 22, 2023. Within 5 days they had me lined up to see a Hematologist Oncologist right away and a Surgical Oncologist. Along with my Gastro Dr sitting in.

Pet Scan, CT Scan and a Chest Xray to take place next week.

Blood work indicates CGA is high.

I have been sick about a year...I have been misdiagnosed with Long Covid.

Hopefully, it's contained like yours.

Thanks so much for the information.

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Replies to "Thank You! It was found during an endoscopy on November 22, 2023. Within 5 days they..."
ginnyos | @ginnyos | Dec 2, 2023

Dear Terry,
My spouse was miss diagnosed for years with GERD. He has a "heavy tumor load". He required surgery to by pass a large tumor. This helped. They put him on a Lanreotide shot that has stabilized the cancer for the moment. Unfortunately, he has had complications from both the surgery and side effects of the drug. But it has been the best option for him at this point.
My advice would be to take one day at a time as it gets overwhelming. There are good treatments available.
Wishing you all the best.

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