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Has anyone had MRI suspicious for malignancy but negative Mammo + US?
Breast Cancer | Last Active: Dec 22, 2023 | Replies (53)Comment receiving replies
My story was different but the lesson is the same. The angst you are probably going through right now is familiar to me, and I know others here as well, even though our particular stories are all different.
Mine went like this; uh oh, there is a lump, go buy a book. Even though I felt panic I didn’t want be an alarmist. Wait a little while, it doesn’t go away it grows quite rapidly. Go to the doctors office, he can’t feel it with normal exam, so I sit up and show it to him (it is visible). So he does 24 core samples right then and there. Yeeeeeoooow! Orders a mammogram and sends me out, I find out later he told his secretary and my friend, I had cancer.
Both needle core and mammogram come back negative, a few weeks later after everything comes back, this surgeon and friend who saved my life said “there is obviously something there and growing let’s take it out and put it under a microscope”. Which came back grade3, her2, ductal carcinoma.
The lesson here is don’t take no for an answer until you are satisfied that you have the all the answers you need.
That same doctor told me one of the wisest things I have ever heard “the only good decision is an informed decision”.
I know this is crazy making for you, what did your doctor say about the findings? Do you have an appointment to investigate this further?
Replies to "My story was different but the lesson is the same. The angst you are probably going..."
Thanks for sharing such a courageous story of your journey of beating the cancer, Chris!
My MRI result came back with a huge surprise! It confirmed that I indeed have Breast cancer (Invasive ductal carcinoma of grade 2, ER+, PR+, Her2-); however, it also showed "a partly visualized 4.3 cm T2 bright well-defined cystic lesion in the left lobe of liver". Apparently this "partly visualized cystic lesion" in my left lobe of liver is huge and much bigger than my breast cancer mass, which one should I fight first? Isn't there any medical equipments that use current technology to detect all cancerous cells in the patient's body to determine which is the most critical one to deal with first?
Thanks in advance for any wise advice! My heart goes out to you all!!
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Thank you for sharing your story, harrowing as it was. As a retired NICU nurse, I'm all about research, and most of all not letting any medical professional gaslight me. It's hard to make a decision on the spur of the moment and it speaks to the importance of not letting anyone invade one's body with needles before having time to gather information. I'm sorry you had that experience of delay and eventual diagnosis. My surgeon is concerned about the possibility of LCIS of ILC. The MRI-guided biopsy hasn't been scheduled yet....I'm hoping to hear from the MRI department early in the coming week with a date for that. This area of concern on MRI is completely new since December 2022 and I'm having a hard time believing this 7.5cm area could have grown that fast in 12 months to be cancer. Nothing to do but research breast oncology surgeons and plastic surgeons in my area so I make a mastecomy decision, if it's needed, having done my homework. Thank you for your support!