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Treatment for Prostate Cancer Metastasized to Bones

Prostate Cancer | Last Active: Feb 27 7:27am | Replies (146)

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@cal77

When I watched Eugene Kwan's video, it sounded like the Triple Therapy was the 'cure'...That you do the therapy for 18 weeks, and then you're off the Eligard and Apalutamide...
He's at the Mayo Clinic. You'd think other doctors would all be doing the same ...
My bone metasis is widespread...PSA levels now after 8 months of Hormone therapy are .2, so they tell me that's low...
I asked about a PET scan, and they told me they'd do a bone scan in a year...
I don't understand why all Doctors aren't doing the same standard treatment that apparently works...
Do I have to go to the Mayo Clinic to get treatment? I'm in Canada...so not as easy to go down there for treatment...
Is there a cure for Stage 4 prostate cancer, or do the treatments just give you a few extra months...
Frustrating...

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Replies to "When I watched Eugene Kwan's video, it sounded like the Triple Therapy was the 'cure'...That you..."

Yes, with widespread metastases, Dr Kwon's triple approach would apply (from my layperson's understanding of his videos).

At my cancer centre (in a different Canadian province), I've been closely consulted and offered information and choices for every stage of my treatment. I know it's hard when you're already sick and low on energy, but I suggest moving heaven and earth to get into your cancer centre in Calgary — a team approach is always better than one (possibly-opinionated) urologist. You could even cold call the cancer centre to find out what referrals you need.

I'd hate for you to spend your retirement savings getting treatment in the US. What you want is available free here in Canada, probably even in your own city — my friend with lymphoma in my city was offered every available treatment, up to and including some brand-new genetic stuff and CAR-T (oncology's last, desperate Hail-Mary pass).

You deserve at least a good explanation of why your urologist is not offering you the option of chemo together with your ADT and radiation (they might have a good reason, but they don't seem to be communicating it to you if they do).

Best of luck, and remember that you're your own best advocate. DM me if you want to discuss further.