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The majority of posts refer to "itching" which I don't have , so I am beginning to wonder if I have something else. I do have burning and constant pain when I'm seated simply from body weight pressure I assume. I have not had a biopsy so far but it looks like that is the next step, which I really dread. The Clobetasol does not seem to be helping and I've used two other steroids as well. This problem is more upsetting than anything I've ever had to deal with and I have other medical issues.

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Replies to "The majority of posts refer to "itching" which I don't have , so I am beginning..."

A biopsy is a simple procedure. Nothing to fear. Good luck.

I’m in the same boat as you and I feel for you. . I have known that I have had LS for years but rarely had a flare. If I had a flare, I would just put some desonide on it which I was prescribed and what I was told to do. . Now I’m in a full-blown flare completely swollen inside my vagina. Have a deep cut on my perineum and am burning like crazy. She told me I was supposed to be using the Desonide a couple times a week but I did not know. She bumped my steroid up to betamethasone valerate 0.1 % topical ointment
Commonly known as: VALISONE but I think it’s working until it’s not. I just pray I don’t have cancer. She is doing a recheck in 6 weeks. If anyone has any suggestions please help. She said if I can get the Lichen under control I need to start on Estrogen cream since the lining on my vulva is gone.

To top it off I have interstitial cystitis so I’m just one big flare and so uncomfortable.

Best of luck to you. Sending love and prayers to all my fellow LS friends.