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Neuropathy | Last Active: Jun 13 6:09am | Replies (111)

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@julbpat

I want to remind everybody who has a far-off appointment, it is fine to call once a week and check for cancellations. They happen all the time, and they would be happy to change your appointment.

I don’t think you will have any luck scheduling a skin biopsy yourself. I agree it’s the gold standard for diagnosis, and I’m sure your neurologist will schedule one. Certain doctors can do them - pain specialists, dermatologists, neurologists. But no one is going to do one without a doctors order.

Having mine and waiting for the results was a time of anxiety and impatience. But I was already on the recommended treatment - seizure meds, like Gabapentin, Lyrica and now Tegretol. That’s what missing from your treatment right now. If you are prescribed those medications, and they help, that’s another missing puzzle piece in place.

Like some others here, I don’t take supplements. I have spent a ton of money on supplements in previous years, as I tried to control my various puzzling bodily changes. Looking back - many, many years - I now recognize that I had SFN symptoms all along. Itching. Damaged ligaments from vigorous regular exercise ( that’s another story). Dizzy spells. Dry mouth and eyes. Reflux. Constipation.

I am 63. My SFN is length-dependent idiopathic. My sister and I share the same symptoms, although I am worse. Look for other family members who have had chronic pain or weakness, etc.
I take Tegretol, Baclofen (muscle relaxant), Prednisone ( when I can get my hands on some), and 1/2 of a 7.5 mg Percocet three times a day. Plus various meds for my broken digestive system.

I am so happy that researchers have worked to create drugs to help broken bodies, and that I can get relief. I often think of how horrible it must be for people without the resources to get help.

You can ask any question on this forum!

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Replies to "I want to remind everybody who has a far-off appointment, it is fine to call once..."

Hello julbpat. Hope you are well. I asked John this question. Thought I might ask you as well. Is there any I formation on Mayo if podiatrist do small fiber neuropathy skin biopsy? I am thinking if I could rule out SFN, than maybe these burning symptoms on the bottom of my feet and on shins and calves just might be just from my back. Where are these biopsies usually done. From what I am reading, right above ankle, one by knee, and one right below hip. I just wonder if any member on here has had a SFN Biopsy done by a Podiatrist? Thanks.