Replies to Thank you for responding. I also have a lot of energy and cannot sleep at night….

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Polymyalgia Rheumatica (PMR) | Last Active: Dec 23, 2024 | Replies (40)

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@susang222

Thank you for responding. I also have a lot of energy and cannot sleep at night. My biggest complaint is that my face is swollen, and I look disfigured. Also, my taste buds are gone, everything tastes blab, and I love to cook. My rheumatologist suggested infusion therapy; she didn't say Actemra, and I said let's wait. I will be interested in hearing about Actemra when you start it.

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Replies to "Thank you for responding. I also have a lot of energy and cannot sleep at night...."

amu66 | @amu66 | Dec 2, 2023

Re the swollen face, which I have experienced because of the treatment in the past, keeping a very regular schedule vis-a-vis food intake, and being strict regarding what foods one does intake has really made a difference for me. Leaving out all simple carbohydrates (sugary foods/beverages, white bread/pasta, etc.), sticking only to complex carbs and protein-rich foods, eating at regular intervals (preferably small amounts more often that larger amounts in fewer sittings), and taking the Prednisolone not earlier that 09:00 am has helped me such a lot. Maybe it could help you too? I'll definitely post about how I get on with Actemra. I'll probably first start to take it in about 3 weeks.

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