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Thanks for reply Jake. Sure are alot of caring people on here.. No complete diagnoses yet. I can't even get into Neurologist here in St Louis area until mid March. And I made that appointment back in first week of October. This world should be focusing on regenerating nerves than handing out meds that do not help. You know out of 40 million people with Neuropathat only about 1/3 is from Diabetic.
Most Neuropathy victims get it from poisoning pharmaceutical medications. And ofcourse many other items man has created. This comes from " Foundatifor Neuropathy " website, about Small Fiber Nerves and if they can regenerate.. "Yes, small nerve fibers are quite robust in their ability to regenerate. Moderate intensity aerobic exercise, followed by healthy diet (unsaturated over saturated fats) has been the two modalities most convincingly shown to slow or reverse SFN damage in human and animal subjects, respectively." If this is true than why aren't we focusing g more on this than just prescribing medications that do nothing. We are in a world of Pharmaceutical Dependance, and so many medications that can lead to neuropathy. I am going to call around to see about finding where I can get a skin biopsy done, that is a much more reliable test for Small Fiber Neuropathy.
Replies to "Thanks for reply Jake. Sure are alot of caring people on here.. No complete diagnoses yet...."
@jerryw
Hi,
I think that your question answer the question, about treatments for neuropathy. I have done many different things and for me diet, exercise, and massage (not for wimps), is working. I have great results with: cold laser therapy, Shockwave treatment, myofascial massage, diet. Yoga and exercise. I was an athlete in my youth and use all that I learned, to improve my neuropathy. I also have IVig. I did use supplements, my Bs counts became spectacular!
JFN
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I want to remind everybody who has a far-off appointment, it is fine to call once a week and check for cancellations. They happen all the time, and they would be happy to change your appointment.
I don’t think you will have any luck scheduling a skin biopsy yourself. I agree it’s the gold standard for diagnosis, and I’m sure your neurologist will schedule one. Certain doctors can do them - pain specialists, dermatologists, neurologists. But no one is going to do one without a doctors order.
Having mine and waiting for the results was a time of anxiety and impatience. But I was already on the recommended treatment - seizure meds, like Gabapentin, Lyrica and now Tegretol. That’s what missing from your treatment right now. If you are prescribed those medications, and they help, that’s another missing puzzle piece in place.
Like some others here, I don’t take supplements. I have spent a ton of money on supplements in previous years, as I tried to control my various puzzling bodily changes. Looking back - many, many years - I now recognize that I had SFN symptoms all along. Itching. Damaged ligaments from vigorous regular exercise ( that’s another story). Dizzy spells. Dry mouth and eyes. Reflux. Constipation.
I am 63. My SFN is length-dependent idiopathic. My sister and I share the same symptoms, although I am worse. Look for other family members who have had chronic pain or weakness, etc.
I take Tegretol, Baclofen (muscle relaxant), Prednisone ( when I can get my hands on some), and 1/2 of a 7.5 mg Percocet three times a day. Plus various meds for my broken digestive system.
I am so happy that researchers have worked to create drugs to help broken bodies, and that I can get relief. I often think of how horrible it must be for people without the resources to get help.
You can ask any question on this forum!