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Median Arcuate Ligament Syndrome (MALS): What can I eat?
Digestive Health | Last Active: Dec 3, 2023 | Replies (23)Comment receiving replies
@cowtownusa
We moved from NY metro area where there is a university hospital around the corner everywhere. We were so spoiled. We moved southeast, SC, also a medical wasteland when we first moved here. Within a couple of years I developed some medical problems and the local specialist gave up on me.
I was able to get an appointment at Mayo in FL close enough to drive 2-3 hrs.
I ended up having MALS surgery at the university hospital in Charleston.
I’m on Medicare now so I’m not limited to SC. Are you limited to your state?
Something many of our Connect members have realized is that you have to advocate for yourself.
You have suffered so many years and it’s affecting your general health.
You seriously need care. Sometimes it’s helpful to talk to your insurance company- they should be interested in helping you find a way to get the surgery you need. It is a rare disorder and they do have to get you care. Don’t give up.
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I found phone numbers to specialist in Portland at the university hospital. I gave the information to my primary, the referral was sent yesterday. Now I wait to hear from Portland, of course I won't wait the suggested two weeks. I will be calling them before the suggested time frame. Not on Medicare yet , I still have a few years to go. Since I retired just after 18 years I forfeited my pension. My jobs burn out rate is 10 years, however if you want the pension and retirement plan you have to stick with it for 20 years. That's a federal job for ya. Long story short, my husband has Medicare thankfully. As for myself I am stuck with our states insurance for now.