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Neuropathy | Last Active: Jun 13 6:09am | Replies (111)

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@jakedduck1

@jerryw
I don't know what specific type of neuropathy I have, only that it's polyneuropathy. My tests showed mild neuropathy. That was many years ago.
If they say “no neuropathy” what if any diagnosis did they give you?
Take care,
Jake

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Replies to "@jerryw I don't know what specific type of neuropathy I have, only that it's polyneuropathy. My..."

Thanks for reply Jake. Sure are alot of caring people on here.. No complete diagnoses yet. I can't even get into Neurologist here in St Louis area until mid March. And I made that appointment back in first week of October. This world should be focusing on regenerating nerves than handing out meds that do not help. You know out of 40 million people with Neuropathat only about 1/3 is from Diabetic.
Most Neuropathy victims get it from poisoning pharmaceutical medications. And ofcourse many other items man has created. This comes from " Foundatifor Neuropathy " website, about Small Fiber Nerves and if they can regenerate.. "Yes, small nerve fibers are quite robust in their ability to regenerate. Moderate intensity aerobic exercise, followed by healthy diet (unsaturated over saturated fats) has been the two modalities most convincingly shown to slow or reverse SFN damage in human and animal subjects, respectively." If this is true than why aren't we focusing g more on this than just prescribing medications that do nothing. We are in a world of Pharmaceutical Dependance, and so many medications that can lead to neuropathy. I am going to call around to see about finding where I can get a skin biopsy done, that is a much more reliable test for Small Fiber Neuropathy.

I highly recommend Cleveland Clinic. I was diagnosed with SFN at the beginning of COVID in 2020. My Dr. at CC was excellent; she called me since I couldn't keep my appt bc of COVID and she diagnosed me over the phone, however, I did go the the Clinic for tests to determine for sure it was SFN. I am having a terrible time finding a good neurologist so basically I have been untreated for the last 3 years. I did have one Dr. that prescribed gabapentin. I have an appt this month to see a new Dr. Btw, the neurologist that diagnosed me was Julia Bucklan at Cleveland Clinic. She is wonderful When she called me; she stayed on the phone with me for an hour asking many questions to determine what was wrong with me.