← Return to Gabapentin side effects?
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Chronic Pain | Last Active: Apr 19 7:53pm | Replies (902)
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← Return to Gabapentin side effects?
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Hey! I just saw your post. Not sure if you're still looking for a solution without going up in dosage, but I thought I could give you my 2 cents anyway. I currently take gabapentin as well, and have been on it for around a year to treat vitamin deficiency/alcoholic neuropathy. The pain has been so insanely severe, and it came on so randomly. All of my doctors keep saying cases like mine are puzzling and extremely rare so. I suppose do what you will with that. Either way, I went into the emergency room last year for something entirely unrelated. I had what turned out to be pneumonia with some pretty nasty edema in my ankles and my feet from being unable to sit or lie down for around 3 days (meaning no sleep either unfortunately). Either way I ended up allowing the doctor on call to admit me to be seen the next morning to have an echo performed on my heart (good thing since all other testing including EKG, Xray, as well as CT scans with contrast didn't pick up that I was in stage 1 congestive heart failure where my left ventricle was just starting to stiffen). Either way, I was also kept to be detoxed from being an alcoholic. I say all of that to say that well, when I walked into that hospital I had full nerve function of both my hands and my feet. I was there for a total of 5 days and while there they also used an ultrasound to run my leg veins because of the edema in my feet. All was normal except some small anomaly inside my left calf. I was discharged on day 5. On day 7, out of nowhere that morning I woke up with this searing pain, burning and tingling in both of my hands, in my feet, and halfway up my calves with also some dysfunction in my ability to control urination as well as bowel movements and also numb nipples. Previously I had none of this going on except a little trouble with being able to hold my bowel movements. I wish I had any idea what happened or when because every pcp I've seen within the last year has told me that I just don't make sense because neuropathy is progressive, it's not really an all or nothing kind of condition meaning it doesn't just hit you all at once one day out of nowhere the way mine did. Anyhoo. I was started out on gabapentin at 100mg 3 times per day by out of all people, my cardiologist because I was having a hard time finding anyone to help me with my alcoholism and history of opioid addiction around 10 years ago from being placed on pain killers after I broke my back and being abruptly ripped off them at the height of the opioid crisis and war on pain patients as I call it. After being abused in an emergency room because it was 4am and my er doctor had a hangover and didn't appreciate how loudly I was crying and being bounced around and told no everywhere because I was also experiencing hyperalgesia happening on both of my feet along with the numbness so inexperienced buttholes kept assuming I wasn't hurting or numb because I could still feel my feet but the nerves were so hot even a touch was and still is unbearable. Anyhoo (again) after my cardio properly diagnosed my neuropathy I was finally able afterward to find a wonderful pcp who has been working with me ever since. Now to the point (I apologize for the long story, but I feel that sharing how we got to where we are at as well as our conditions adds a piece to the puzzle we need as patients so we know if someone else's remedy will or won't work based on how similar the stories and diagnoses are)... I, too, am prescribed 1800mg per day. I was previously prescribed the same 600 3 times daily and hit a wall on pain but didn't want to increase. Have you considered instead asking your doctor to prescribe your medication in a different way, but the same dosage? That's what I did and it's helped a lot. I am now prescribed 400mg 4 times daily followed by 1-200 mg at bedtime every day. I found that splitting up the dosage like that allowed me to lose a lot of the exhaustion as well as helped a lot to carry me throughout my day better without having to wake up in searing pain every night or upping my dosage. I didnt want to simply because gabapentin already scares me in that frequent usage has a very high rate of extremely early onset dementia. I, myself and currently trying to research natural alternatives, and when I find one that works I plan to work with my PCP on weaning off the gaba. I am kind of afraid there too though as I've heard absolute horror stories about gaba withdrawal. Allegedly its worse than opioid withdrawal and on par with it being just as dangerous as alcohol withdrawal. We will see though I guess. I can't lose my brain early, I'm just 36 with 2 small sons. So. Yeah. Either way, I hope my super long post helps you or even someone else even if just a little. I pray happiness, love, and healing find any and everyone who happen to stumble upon my post. Please, feel free to reach out to me with any questions as well as suggestions. I'm really curious with other experiences as well as natural alternatives that work. I'm at the point that I truly am willing to try anything. I've even signed up for ketamine therapy in hopes that maybe if it rewires brain activity maybe it can stop my pain somehow.