← Return to The Last Phase of the Caregiver's Journey...
DiscussionThe Last Phase of the Caregiver's Journey...
Caregivers: Dementia | Last Active: Dec 2, 2023 | Replies (18)Comment receiving replies
Replies to "in reply to @hbjuniperflat You are an amazing woman with a tremendous amount of courage, and..."
Thank you so much for your kind words of encouragement. I found your use of the word sacred very interesting. As my husband was moving from “transitioning to actively dying” ( according to the hospice nurses), I remember being upset by a loud, boisterous relative who had come to say his goodbye to my husband. His joking and laughter was really getting to me as I felt like my husband, who was unresponsive by then, was lying in a sacred place. Maybe I was just too emotionally drained by that point, but I also remember asking someone to invite the loud relative to another room in our home in order to return my husband’s space to a more serene environment.
I can understand why your sister would need to place her husband in a care facility. Caring for someone 24/7 is a daunting task that can go on for a very long time. It certainly takes a toll on the family member(s) who are in that role. Fortunately, I was able to keep my husband at home to the very end, which was our desire, but before I truly knew he was nearing the end of his journey, I was worried that I was reaching the point where I could no longer keep him safe at home. Sometimes I felt like I was living with, and suffering from a disease I didn’t even have… my prayer during those times was to ask that there would be enough of me left at the end of our Parkinson’s/LBD journey to find joy again. I have five beautiful granddaughters who are now helping me to begin transitioning to a life outside of my caregiving role. ♥️