← Return to Sjögren’s Syndrome: how do you manage the symptoms?

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@frances007

in reply to @eileenb1022 Interestingly enough, I found this article last night, and you might want to check it out.

https://www.news-medical.net/news/20231123/Saliva-substitute-from-University-of-Leeds-scientists-offers-major-relief-for-dry-mouth-conditions.aspx

I too have this problem, and recently saw a new rheumatologist after my former one, now a friend, reviewed my medical records and came up with a diagnosis of scleroderma limited. The "new" doctor did not agree with my friend's findings and ran some labs, while admitting that a negative result did not necessarily mean that I do not have this disorder. When the labs did come back negative, I pressed her further and sent he a link from the NIH which discussed that a blood test alone for many autoimmune diseases was insufficient to make a correct diagnosis. Of course the "new" doctor shut down the conversation and told me to discuss the issue with my PCP, but I already know where that discussion will go. Best of luck

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Replies to "in reply to @eileenb1022 Interestingly enough, I found this article last night, and you might want..."

If you do have scleroderma, I have a friend who did also but cured it through addressing her gut microbiome issues. It was a very stick diet for a while, but her tight shiny skin is now very soft. The doctor said she no longer had scleroderma. This was about 4 years ago and she is still healthy at 78. There are many videos online and books about the gut or microbiome to get you started.