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Inactive bladder with NO elasticity remaining

Kidney & Bladder | Last Active: Apr 29 12:27pm | Replies (65)
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@unvecchiouomo

I see a urologist once annually to confirm that I still require a prescription for the catheters (apparently a Medicare requirement). I have (knock on wood) remained healthy having no UTI's or other issues relating to my bladder. There are no alternatives (until modern medical science comes up with a bladder replacement, ha-ha). For as long as I have been cathing, I regret it and get bummed virtually every time. Mentally, I've not completely accepted this as a way of life that I cannot change.
So, having a "community of peers" to have discussions helps me to accept my fate. Does that make sense?

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Replies to "I see a urologist once annually to confirm that I still require a prescription for the..."
twiga | @twiga | Apr 29 12:27pm

Can I ask how you are doing now? I am deciding whether to go the route of self-catheterization because I had a good portion of my bladder, incl urethra, removed in a cancer surgery. Right now I can’t walk 45 mins without soaking pads and clothing, and I go through pads all day long. (I don’t drink enough as a result, but also I’m less active than I could be.) After trying the more minor solutions, Mayo’s solution for me as the next-least invasive is to tie off the bladder with a sling and have me self-cath. I have tried it, it’s not hard and it doesn’t hurt, so I wonder: have you come to terms with this change in your life? Do you take bladder Botox to help with urgency or frequency?

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