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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)

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@lrcg

I had surgery last December 22,2022 for Pagets of the vulva. I believe I have probably had it for 5-7 years prior and didn't know it and my Gyn didn't catch it. I had an itchy spot but it was intermittent then Covid happened and my Gyn retired and I was at a loss for where to go. Finally found a new Gyn and remembered to tell her about the itch. After a biopsy it was confirmed. That's when the whirlwind started. I have had one check up in June 2023 and go tomorrow for my second check up. I am pretty sure I have it in another area but really don't want another surgery it was awful. I am thinking of a second opinion or the cream, I am open to anyone's thoughts I have felt so alone. I will post about my appointment but I think I have lost confidence in the current Dr.

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Replies to "I had surgery last December 22,2022 for Pagets of the vulva. I believe I have probably..."

Welcome, @lrcg. If getting a second opinion at Mayo Clinic is an option for you, here is the link to get started: http://mayocl.in/1mtmR63

How was your checkup? What did you learn?